Ethical Issues in Engaged Research

Community-Campus Partnerships for Health (CCPH) is participating in Re-Engaging Ethics: Ethical Issues in Engaged Research, funded by the Greenwall Foundation. The project is led by Dr. Giselle Corbie-Smith, Professor of Social Medicine and Medicine at the University of North Carolina at Chapel Hill (UNC), and Director UNC Center for Health Equity Research. Project co-investigators include Al Richmond, CCPH Executive Director; Mysha Wynn, Executive Director, Project Momentum, Inc; and Dr. Stuart Rennie, Associate Professor, UNC Social Medicine.

The project aims to create guidelines to guide the conduct of engaged research and is informed by an array of stakeholders conducting and supporting research including academic researchers, community partners, IRB representatives, and ethicists.

Preliminary Ethical Statements

Pre-conference attendees at CCPH’s 2016 International Conference formulated the following 15 ethical statements to guide the development and conduct of community engaged research.  CCPH members involved in and impacted by research conducted in community settings are encouraged to further shape guidelines by providing your feedback.

Ensuring Ethical Community-Engaged Research: Elevating the Role and Impact of Community-Based IRBs and Research Review Committees

Community-Campus Partnerships for Health (CCPH) and Special Service for Groups Research and Evaluation (SSG R&E) hosted a one-day national meeting on April 21, 2018. The purpose of the conference was to disseminate findings on enhancing the ability of CRPs to ensure that research undertaken in their communities is ethical and impactful. Specifically, the conference aimed to convene existing and emerging community IRBs and research review committees from across the country to:

1) Articulate CRP roles, review considerations, benefits and impact;

2) Identify priorities for future research such as how CRPs impact health disparities;

3) Deepen the ethics review knowledge of CRP administrators and reviewers;

4) Identify priorities for professional development of CRP administrators and reviewers;

5) Exchange promising practices and address shared challenges; and

6) Establish mechanisms for an ongoing community of practice.

*This event was made possible in-part through an R13 funding grant (2R13MD008673-03) from the National Institute of Minority Health and Health Disparities. Generous support was also provided by Southern California, Clinical and Translational Science Institute’s Community Engagement Program, University of California Los Angeles (UCLA) Department of Social Welfare, University of California Los Angeles (UCLA) Center for HIV Identification, Prevention and Treatment Services (CHIPTS), University of California Los Angeles (UCLA) California HIV/AIDS Policy Research Centers (CHPRC), and University of California Los Angeles (UCLA) Center For AIDS Research (CFAR) Health Disparities Core.